Serveur d'exploration sur la musique en Sarre

Attention, ce site est en cours de développement !
Attention, site généré par des moyens informatiques à partir de corpus bruts.
Les informations ne sont donc pas validées.

Consumerism in prenatal diagnosis: a challenge for ethical guidelines

Identifieur interne : 000D53 ( Main/Exploration ); précédent : 000D52; suivant : 000D54

Consumerism in prenatal diagnosis: a challenge for ethical guidelines

Auteurs : W. Henn

Source :

RBID : PMC:1733311

Abstract

The ethical guidelines for prenatal diagnosis proposed by the World Health Organisation (WHO), as well as by national regulations, only refer to paternity and gender of the fetus as unacceptable, disease-unrelated criteria for prenatal selection, as no other such parameters are at hand so far. This perspective is too narrow because research on complex genetic systems such as cognition and ageing is about to provide clinically applicable tests for genetic constituents of potentially desirable properties such as intelligence or longevity which could be misused as parameters for prenatal diagnosis. Moreover, there is an increasing number of prenatally testable genetic traits, such as heritable deafness, which are generally regarded as pathological but desired by some prospective parents and taken into account as parameters for pro-disability selection. To protect prenatal diagnosis from ethically unacceptable genetic consumerism, guidelines must be clarified as soon as possible and updated towards a worldwide restriction of prenatal genetic testing to immediately disease-determining traits.

Key Words: Genetics • prenatal diagnosis • ethics • consumerism


Url:
DOI: 10.1136/jme.26.6.444
PubMed: 11129845
PubMed Central: 1733311


Affiliations:


Links toward previous steps (curation, corpus...)


Le document en format XML

<record>
<TEI>
<teiHeader>
<fileDesc>
<titleStmt>
<title xml:lang="en">Consumerism in prenatal diagnosis: a challenge for ethical guidelines</title>
<author>
<name sortKey="Henn, W" sort="Henn, W" uniqKey="Henn W" first="W." last="Henn">W. Henn</name>
</author>
</titleStmt>
<publicationStmt>
<idno type="wicri:source">PMC</idno>
<idno type="pmid">11129845</idno>
<idno type="pmc">1733311</idno>
<idno type="url">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1733311</idno>
<idno type="RBID">PMC:1733311</idno>
<idno type="doi">10.1136/jme.26.6.444</idno>
<date when="2000">2000</date>
<idno type="wicri:Area/Pmc/Corpus">000193</idno>
<idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Corpus" wicri:corpus="PMC">000193</idno>
<idno type="wicri:Area/Pmc/Curation">000192</idno>
<idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Curation">000192</idno>
<idno type="wicri:Area/Pmc/Checkpoint">000162</idno>
<idno type="wicri:explorRef" wicri:stream="Pmc" wicri:step="Checkpoint">000162</idno>
<idno type="wicri:Area/Ncbi/Merge">000000</idno>
<idno type="wicri:Area/Ncbi/Curation">000000</idno>
<idno type="wicri:Area/Ncbi/Checkpoint">000000</idno>
<idno type="wicri:doubleKey">0306-6800:2000:Henn W:consumerism:in:prenatal</idno>
<idno type="wicri:Area/Main/Merge">000D54</idno>
<idno type="wicri:Area/Main/Curation">000D53</idno>
<idno type="wicri:Area/Main/Exploration">000D53</idno>
</publicationStmt>
<sourceDesc>
<biblStruct>
<analytic>
<title xml:lang="en" level="a" type="main">Consumerism in prenatal diagnosis: a challenge for ethical guidelines</title>
<author>
<name sortKey="Henn, W" sort="Henn, W" uniqKey="Henn W" first="W." last="Henn">W. Henn</name>
</author>
</analytic>
<series>
<title level="j">Journal of Medical Ethics</title>
<idno type="ISSN">0306-6800</idno>
<idno type="eISSN">1473-4257</idno>
<imprint>
<date when="2000">2000</date>
</imprint>
</series>
</biblStruct>
</sourceDesc>
</fileDesc>
<profileDesc>
<textClass></textClass>
</profileDesc>
</teiHeader>
<front>
<div type="abstract" xml:lang="en">
<p> The ethical guidelines for prenatal diagnosis proposed by the World Health Organisation (WHO), as well as by national regulations, only refer to paternity and gender of the fetus as unacceptable, disease-unrelated criteria for prenatal selection, as no other such parameters are at hand so far. This perspective is too narrow because research on complex genetic systems such as cognition and ageing is about to provide clinically applicable tests for genetic constituents of potentially desirable properties such as intelligence or longevity which could be misused as parameters for prenatal diagnosis. Moreover, there is an increasing number of prenatally testable genetic traits, such as heritable deafness, which are generally regarded as pathological but desired by some prospective parents and taken into account as parameters for pro-disability selection. To protect prenatal diagnosis from ethically unacceptable genetic consumerism, guidelines must be clarified as soon as possible and updated towards a worldwide restriction of prenatal genetic testing to immediately disease-determining traits. </p>
<p>
<bold>Key Words:</bold>
Genetics • prenatal diagnosis • ethics • consumerism</p>
</div>
</front>
</TEI>
<affiliations>
<list></list>
<tree>
<noCountry>
<name sortKey="Henn, W" sort="Henn, W" uniqKey="Henn W" first="W." last="Henn">W. Henn</name>
</noCountry>
</tree>
</affiliations>
</record>

Pour manipuler ce document sous Unix (Dilib)

EXPLOR_STEP=$WICRI_ROOT/Wicri/Sarre/explor/MusicSarreV3/Data/Main/Exploration
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 000D53 | SxmlIndent | more

Ou

HfdSelect -h $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd -nk 000D53 | SxmlIndent | more

Pour mettre un lien sur cette page dans le réseau Wicri

{{Explor lien
   |wiki=    Wicri/Sarre
   |area=    MusicSarreV3
   |flux=    Main
   |étape=   Exploration
   |type=    RBID
   |clé=     PMC:1733311
   |texte=   Consumerism in prenatal diagnosis: a challenge for ethical guidelines
}}

Pour générer des pages wiki

HfdIndexSelect -h $EXPLOR_AREA/Data/Main/Exploration/RBID.i   -Sk "pubmed:11129845" \
       | HfdSelect -Kh $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd   \
       | NlmPubMed2Wicri -a MusicSarreV3 

Wicri

This area was generated with Dilib version V0.6.33.
Data generation: Sun Jul 15 18:16:09 2018. Site generation: Tue Mar 5 19:21:25 2024